|Due to your support, the pledge for Muscular Dystrophy has been presented
at 10 Downing Street and been replaced by a new £20m Charter co-sponsored by the three
charities PPUK, MDC and the DFSG together with the All Party Parliamentary Group of MP's
for Muscular Dystrophy.
This new charter is available to sign at www.parentprojectuk.com/signcharter
The campaign for a cure for Duchenne Muscular Dystrophy will continue.
The Race Against Time Charter:
Every year sees the death of up to 100 boys in the UK to a condition known as Duchenne Muscular Dystrophy.
Every week around 2 boys are born with Duchenne Muscular Dystrophy, a genetic condition that will progressively destroy their muscles leaving them wheelchair bound in their early teens.
Every day these boys and their families have to face the knowledge that although there has been a gradual improvement in the management of the condition, the current mean life span is still only 19. The devastation this condition has on families cannot be underestimated. DMD can affect anyone; almost a third of cases are new genetic mutations that occur out of the blue, there is no regard of background or race.
Every one involved in The Right to Survive Campaign, launched in 2002, demands the right to life for all young people suffering from DMD and seeks increased funding of research into finding a cure. A campaign document outlining the need for £20m over five years of new Government money for research into DMD has been agreed by the All Party Parliamentary Group on Muscular Dystrophy and the three DMD charities.
Less Than a Minute for Someone's Lifetime
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